Neurofibromatosis-1: Approach to Care

Neurofibromatosis, or NF, is a genetic disorder that affects one out of 4,000 people. A more common genetic disorder, it is characterized by the formation of tumors involving nerve tissue in the skin, subcutaneous tissue, cranial nerves and spinal root nerves. The symptoms of NF can be varied, and they may evolve over time. NF is a progressive disease, therefore, our team provides ongoing, multidisciplinary care that is personalized around the patient’s medical needs.

UF Health experts in oncology, neurology, medical genetics, neurosurgery, ophthalmology, otolaryngology, and learning disabilities, work together to address the multiple complications and complex challenges that can accompany neurofibromatosis. Our care team uses modern equipment and innovative techniques to treat this disease. They are also leading the way in researching new, novel therapies.