Communication of Dementia Diagnoses: Patient and Family Experiences and Developing Best Practices

Purpose

Share your experiences with receiving a diagnosis of dementia.

We want to learn about the experience that individuals with memory and thinking problems and their care partners had when receiving a dementia diagnosis.

This information will help healthcare providers know how to better give this diagnosis.

This study will be completed remotely. No in-person visits required.

If you’re interested in learning more, please continue to read this webpage or contact the study coordinator, Noheli Gamez: 



What’s involved?

  • Volunteers will participate in a telephone interview about their experiences. Interviews will be scheduled at your convenience.
  • Interviews will last no longer than one hour.


Are you eligible?

To participate, you must be:

  • A person with a diagnosis of dementia given in the past 2 years
  • OR the care partner/caregiver of a person who received a diagnosis of dementia in the past 2 years
  • Fluent in English or Spanish
  • Able and willing to participate in a phone interview


Contact

If you’re interested in learning more or participating, please call or email the study coordinator, Noheli Gamez:



Funded by the Florida Department of Health Ed and Ethel Moore Alzheimer’s Disease Research Program. 

This study is led by Dr. Carma Bylund and Dr. Melissa Armstrong



Study Information Flyer

Age

18 to 65
65 and over

Gender

Male
Female

Monetary compensation

Yes

Can be done from home

Yes

Keywords

Dementia, Dementia - what to ask your doctor

Principal Investigator

Contact Information

Noheli.gamez@neurology.ufl.edu

352-733-2419


Be an Informed Participant

Before deciding to participate in a research study, take time to learn about clinical research, how it's conducted and your rights as a research participant. Following are some helpful resources from independent sources. Always remember that a clinical research study is research, not treatment.

Know Who to Contact

  • Eligibility: For questions about a specific study and who is eligible to participate, call or email the contact person listed for that study.
  • Your Rights: For questions about your rights as a research participant, contact the UF Institutional Review Boards at 352-273-9600.
  • Feedback: For general questions or feedback about study listings, email the UF Clinical and Translational Science Institute at UFStudies@health.ufl.edu.

Other Resources

  • HealthStreet: Health-focused services, classes and events, and opportunities to participate in research.
  • ResearchMatch.org: Join a national registry of volunteers willing to be contacted about research studies.

For Research Teams