Communication of Dementia Diagnoses: Patient and Family Experiences and Developing Best Practices

Share your experiences with receiving a diagnosis of dementia.

We want to learn about the experience that individuals with memory and thinking problems and their care partners had when receiving a dementia diagnosis.

This information will help healthcare providers know how to better give this diagnosis.

This study will be completed remotely. No in-person visits required.

If you’re interested in learning more, please continue to read this webpage or contact the study coordinator, Noheli Gamez: 

• Email: Noheli.gamez@neurology.ufl.edu
• Phone: 352-733-2419

What’s involved?

• Volunteers will participate in a telephone interview about their experiences. Interviews will be scheduled at your convenience.
• Interviews will last no longer than one hour.

Are you eligible?

To participate, you must be:

• A person with a diagnosis of dementia given in the past 2 years
• OR the care partner/caregiver of a person who received a diagnosis of dementia in the past 2 years
• Fluent in English or Spanish
• Able and willing to participate in a phone interview

Contact

If you’re interested in learning more or participating, please call or email the study coordinator, Noheli Gamez:

• Email: Noheli.gamez@neurology.ufl.edu
• Phone: 352-733-2419

Funded by the Florida Department of Health Ed and Ethel Moore Alzheimer’s Disease Research Program. 

This study is led by Dr. Carma Bylund and Dr. Melissa Armstrong.