Dynamic Respiratory Muscle Function in Late-Onset Pompe Disease

Purpose

The purpose of this research study is to learn about the relationships between strength and endurance of the respiratory muscles and the movements generated during breathing. This study will compare respiratory muscle strength and endurance of Pompe patients to those of healthy controls. 

The goal of this study is to learn as much as possible about the movement patterns of the respiratory muscles in Pompe disease. Any new information we learn may be used to develop better care for other people with these conditions in the future.

Procedures

If you agree to participate in this study, the following tests will be completed over a two-day period:

  • Respiratory pressure tests
  • Breathing tests
  • Magnetic Resonance Imaging and Magnetic Resonance Spectroscopy (MRI and MRS)

For details regarding eligibility criteria or to learn more about the study, please contact Jessica Ehrbar:

Age

18 to 65

Gender

Male
Female

Monetary compensation

Yes

Can be done from home

No

Keywords

Pompe Disease

Principal Investigator

Barbara Smith, PhD, PT

Department

Neurology

Contact Information

jehrbar@ufl.edu

(352) 273-6855


Be an Informed Participant

Before deciding to participate in a research study, take time to learn about clinical research, how it's conducted and your rights as a research participant. Following are some helpful resources from independent sources. Always remember that a clinical research study is research, not treatment.

Know Who to Contact

  • Eligibility: For questions about a specific study and who is eligible to participate, call or email the contact person listed for that study.
  • Your Rights: For questions about your rights as a research participant, contact the UF Institutional Review Boards at 352-273-9600.
  • Feedback: For general questions or feedback about study listings, email the UF Clinical and Translational Science Institute at CTSI-Studies-L@lists.ufl.edu.

Other Resources

  • HealthStreet: Health-focused services, classes and events, and opportunities to participate in research.
  • ResearchMatch.org: Join a national registry of volunteers willing to be contacted about research studies.

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