National DBS Brain Tissue Network
The goal of this study is to store your tissues and medical information and potentially use it in future research. Many different kinds of research use human tissues. Some researchers may develop new tests to find diseases. Others may develop new ways to treat or even cure diseases. In the future, some of the research may help to develop new products, such as tests and drugs. Some research looks at diseases that are passed on in families (called genetic research). Research done with your tissues may look for genetic causes and signs of disease.
If you agree, your brain and the DBS leads (from now on referred to as tissues) will be collected and stored after your death for future research.
In addition the following medical information will be collected, used, and shared with qothers as part of your participation in this study.
- Mailing Address*
- Date of birth, date of death, age, gender, clinical diagnoses, co-morbid diagnoses
- Diagnosis for which DBS was performed
- Clinic and Procedure dates
- DBS Lead information (manufacturer, model, date of implant)
- DBS programming information
- Complete past medical history
- Records of physical exams
- Laboratory, x-ray, MRI, and other test results
- Diaries, assessment results and questionnaires
- Records about study medications or drugs
- Records about study devices
- Information related to your mental health condition
If you are interested in learning more about this study, please contact Dr. Vedam-Mai at (443) 935-3935 or email firstname.lastname@example.org.
Can be done from home
KeywordsParkinson disease, Parkinson's disease, Parkinson's disease - resources, Neurology
Principal InvestigatorVinata Vedam-Mai, MSc, PhD
Begin a new search for other research studies
Studies listed on this site have been approved by a UF Institutional Review Board (IRB), which works to ensure the welfare and rights of research participants as required by federal regulations. Study listings are provided by the UF Clinical and Translational Science Institute in collaboration with UF research teams and the UF IRBs.