North American Registry for Care and Research in Multiple Sclerosis (NARCRMS)
The North American Registry for Care and Research in Multiple Sclerosis (NARCRMS) is a database intended to collect longitudinal physician-reported and clinical information from people with multiple sclerosis (MS) over a long period of time and will bring together information and data collected in multiple registries and databases across the U.S. and Canada.
At your annual visits, we will collect information about a number of aspects of your MS, including a detailed neurologic examination as well as some testing that may be different from the routine visits with your neurologist. These standardized research tests will measure a variety of aspects regarding the functioning of your nervous system.
We wish to store your medical information and potentially use it in future research. Many different kinds of research uses medical information. Some researchers may develop new tests to find diseases. Others may develop new ways to treat or even cure diseases. In the future, some of the research may help to develop new products, such as tests and drugs.
The following medical information will be collected and stored in the medical information bank:
- Demographics: data on where you were born, your race, ethnicity
- Medical History
- Illicit drug and tobacco history
- History of infectious diseases: AIDS, hepatitis
- Results of standard of care neurological examinations
- Immunization History
- Medication history
- Results of standard of care MRIs. All identifying information is removed from the images before they are uploaded into the database.
- Results of yearly neurological and clinical examinations
- Results of gait and mobility examinations
- Information and data related to an exacerbation of your MS
- Results of research assessments
- Results of blood and urine laboratory tests
- Diagnosed with MS
- 18 - 50 years old
Please contact Victoria Hope for more information about study procedures and eligibility:
KeywordsMultiple sclerosis, Multiple sclerosis - resources, Neurology
Principal InvestigatorAugusto iravalle, MD
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Studies listed on this site have been approved by a UF Institutional Review Board (IRB), which works to ensure the welfare and rights of research participants as required by federal regulations. Study listings are provided by the UF Clinical and Translational Science Institute in collaboration with UF research teams and the UF IRBs.