Tourette Southeast Centers Tic Disorders Data Bank
We wish to store your medical information and routine completed questionnaires to potentially use it in future research. Many different kinds of research uses medical information from data bank sources.
Some researchers may develop new tests to find diseases or complete assessments that ease the process of diagnosing disorders. Others may develop new ways to treat or even cure diseases. In the future, some of the research done with your medical information and clinical questionnaires may help to develop new products, such as tests, treatments and drugs.
By allowing your medical information and clinical questionnaires to be stored as part of the Southeast Centers Tic Disorders Data Bank, to be utilized for future unknown research, your information will be gathered with data with the following six clinics (who are designated as a collaborative consortium Southeast Regional Centers of Excellence within the Tourette Association of America):
- Emory University
- University of Alabama-Birmingham
- University of Florida
- University of Miami
- Palmetto Health-University of South Carolina
- University of South Florida-Rothman Center
Your medical information and clinical questionnaires will be kept in a secure location in an online data bank system called REDCap, hosted through the University of Florida, so that it may be used in future research to learn more about your medical condition and other medical problems.
Your medical information and clinical questionnaires/data will be collected during your routine visit and entered into the secure database at each designated clinic via the REDCap.
- Patient at the UF Health Center for Excellence Tourette Clinic
For information about study procedures or becoming a patient at the UF Health Center for Excellence Tourette Clinic, please contact Heather Simpson:
- (352) 294-5385
Can be done from home
KeywordsTourette Syndrome, Neurology
Principal InvestigatorIrene Malaty, MD
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Studies listed on this site have been approved by a UF Institutional Review Board (IRB), which works to ensure the welfare and rights of research participants as required by federal regulations. Study listings are provided by the UF Clinical and Translational Science Institute in collaboration with UF research teams and the UF IRBs.