The UF Health Interdisciplinary Concussion Clinic Databank

Purpose

We are asking permission from you to store some of the information from history, physical examination, and diagnostic evaluation routinely collected during your clinical evaluation at The UF Health Interdisciplinary Concussion Clinic in order to use it for future research.

This data will be used in future studies to validate current and future concussion management tools and strategies and gain further insight into concussion diagnosis and management. This information may also be used to determine whether you would qualify for participation in any future studies. If so, you might be invited to participate in a study in the future.

Procedures

If you agree, the following information will be collected and stored indefinitely as part of your routine clinical care at The UF Health Interdisciplinary Concussion Clinic and stored in the medical information bank:

  • Name (Note that if you agreed to be contacted for future studies, your name and contact information will be retained in the database, but will not be shared with other investigators unless these investigators have requested contact information for future projects that have gained Institutional Review Board approval)
  • Records of physical exams
  • Demographics (e.g., date of birth, gender, sex, ethnicity)
  • Diagnoses
  • Medical and treatment results (e.g., laboratory, CT, MRI)
  • Complete medication list
  • Neuropsychological clinic notes and assessments
  • Cognitive and psychiatric test results
  • Information from voice, video, digital, or image recordings related to diagnoses and/or treatments of current and past traumatic brain injuries
  • Family information (e.g., income, occupation, residence, medical history)
  • Academic History
  • Diaries, questionnaires, standard of care assessments and scales
  • Contact information (e.g., phone number, email address, mailing address)
  • Future research data from IRB-approved research projects that have declared this inclusion in their informed consent forms may be added in the databank

Eligibility

  • History of traumatic brain injury or exposure to sub-concussive impacts.

For additional study details and eligibility criteria, please contact Julie Segura: 

Age

18 and under
18 to 65
65 and over

Gender

Male
Female

Monetary compensation

No

Can be done from home

No

Keywords

Concussion, Concussion - what to ask your doctor - adult, Concussion - what to ask your doctor - child, Neurology

Principal Investigator

Russell M. Bauer, PhD

Department

Neurology

Contact Information

Julie.Segura@neurology.ufl.edu

(352) 273-5566


Be an Informed Participant

Before deciding to participate in a research study, take time to learn about clinical research, how it's conducted and your rights as a research participant. Following are some helpful resources from independent sources. Always remember that a clinical research study is research, not treatment.

Know Who to Contact

  • Eligibility: For questions about a specific study and who is eligible to participate, call or email the contact person listed for that study.
  • Your Rights: For questions about your rights as a research participant, contact the UF Institutional Review Boards at 352-273-9600.
  • Feedback: For general questions or feedback about study listings, email the UF Clinical and Translational Science Institute at CTSI-Studies-L@lists.ufl.edu.

Other Resources

  • HealthStreet: Health-focused services, classes and events, and opportunities to participate in research.
  • ResearchMatch.org: Join a national registry of volunteers willing to be contacted about research studies.

For Research Teams