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Living with a Lung Transplant

After the Surgery

  • Patients can expect to be in the hospital for 3 to 4 weeks after surgery. 
  • Patients and their caregivers live in Gainesville for 10 to 12 weeks once they are discharged from the hospital.

Our social worker can help you secure transplant housing while living in Gainesville. This is to allow you to recover from surgery, learn how to take care of your new lungs, participate in physical therapy and attend weekly follow-up clinic appointments with our pulmonologist at the Medical Plaza.

We teach you how to take care of your new lungs, as well as how to create a healthy diet and exercise program.

Lung Support Group

The the UF Health Lung Transplant Program founded a support group that provides education and psychosocial support for patients who have lung disease and are awaiting lung transplants and who have been transplanted. 

Adult Lung Transplant Support Group

  • This weekly support group is facilitated by UF Health Shands Transplant Center social worker and transplant coordinators.
  • The group is open to patients with advanced lung disease, listed patients awaiting transplant and transplanted patients, as well as caregivers. We do require that our patients undergoing transplant evaluation testing attend support group the week they are here.


Patients are not allowed to use the following “over-the-counter” medications due to kidney toxicity:

  • Advil
  • Aleve
  • Ibuprofen products
  • Motrin
  • Non-steroidal products

Reasons to call your transplant coordinator

Call your coordinator for any of the following conditions:

  • Temperature: 100.0°F or above
  • Systolic blood pressure (top number) greater than 160 or less than 90
  • Diastolic blood pressure greater than 100 or less than 40
  • Recheck your blood pressure after 15-30 minutes and call if the values remain elevated or decreased*
  • Heart Rate: Above 125 beats a minute at rest
  • FEV1 Values: Below the number your physician gives you
  • Breathing: Shortness of breath (that is different or new)
  • Energy: Decrease
  • Sputum: Change in color
  • Vomiting or Diarrhea: If you have vomiting or diarrhea (more than 3 watery stools per day), call your coordinator as soon as possible! This can change how your medications are absorbed, which may lead to rejection.

Your coordinator will tell you how to manage these problems.