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Hospice is considered to be the model for quality, compassionate care for people facing a life-limiting illness or injury.
Hospice care involves a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's needs and wishes. Support is provided to the patient's loved ones as well. At the center of hospice and palliative care is the belief that each of us has the right to die pain-free and with dignity, and that our families will receive the necessary support to allow us to do so.
When is it Time for Hospice Care?
For many people who are faced with learning how to live with a terminal illness, hospice care can be the answer. It can mean living with a pain-free peace of mind, allowing for comfortable, quality living, as well as time to address important personal and financial affairs. Below are some common questions people have about hospice care.
What is hospice care?
Hospice is not a place, but a particular type of care. The majority of hospice care is provided in the patient’s home, the home of a loved or in a nursing home. Some hospice providers also offer in-patient care in hospice facilities where specially trained medical professionals provide the care. Their goal is to reduce the patient’s pain and control other symptoms, resulting in the patient having an increased ability to live life. Hospice care also provides support services for the emotional and spiritual needs of the patient and their loved ones.
Doesn’t choosing hospice mean “giving up on life”?
This is a question commonly asked about hospice care. The answer is no. Choosing hospice means choosing to add life to days, rather than adding days to life. Trained professionals monitor the patient’s condition regularly. Hospice care allows the patient and their loved ones to refocus their energy and attention away from spending time in hospitals and doctors’ offices to spending quality time together at home.
How does someone qualify for hospice care?
- Life expectancy of six months or less, confirmed by an attending physician
- Goal of comfort care rather than aggressive care measures
- Allowing for a natural death to occur, meaning the wish for no heroic end of life measures
Isn’t hospice just for people with cancer?
No. Hospice is for any person who is living with a terminal disease and a life expectancy of less than six months.
What signs might mean it is time for hospice care?
- Repeated hospitalizations or visits to the emergency room
- Failure to "bounce back" after medical set-backs occur
- Increase in pain, nausea, breathing distress or other symptoms
- Poor rehabilitation potential
- Less participation in favorite activities or hobbies
- Increased dependence requiring assistance for walking, eating, bathing, dressing
- Decrease in alertness, increase in sleep, more withdrawn
- Increased difficulty with comprehension
- Significant decrease in appetite
- Weight loss for no identified reasons
Can I continue to use my doctor if I decide on hospice care?
Yes. A patient who is receiving hospice services may be cared for under their physician of choice. The alternative option is to have your symptoms cared for by the hospice physician.
What services are included in hospice care?
Hospice services are provided by an interdisciplinary team of specially trained clinical staff and volunteers. The team includes a doctor, nurse, social worker, certified nurse’s aide and volunteers. A hospice chaplain is also available upon request as well as other forms of care such as pet therapy, massage therapy and music therapy.
Can I live in my own home and receive hospice care?
Yes. One of the main goals of hospice care is to enable the patient to remain out of the hospital setting and in the comfort of their own home environment. Hospice care is provided in private homes, nursing homes and assisted living facilities.
What are the hospice levels of care?
The symptoms a patient experiences often change over time, requiring different levels of hospice care. There are four levels of care:
- Routine Home Care: Day-to-day care is provided by caregivers with support of hospice staff. Visits are made according to the patient’s needs and are provided wherever the patient calls home.
- Inpatient Respite Care: When a caregiver needs short-term relief, a patient can be admitted to a contracted nursing facility or to an inpatient hospice care center for up to five (5) consecutive days under the hospice Medicare benefit. This service may be used on an occasional basis.
- General Inpatient Care: When a patient is experiencing symptoms, like pain, that cannot be controlled at their home the patient can be admitted to a hospice care facility for short-term management of the acute symptoms.
- Continuous Home Care: When a patient is at home and experiencing acute symptoms, like pain, continuous hospice care at home can sometimes be provided for a limited number of days.
Will hospice take away my medicines?
As the hospice team works with the patient and their physician to control the pain and other symptoms related to the terminal illness, it may be necessary to re-evaluate medications on a regular basis. Effective management of pain, nausea and other symptoms is always a primary goal of a hospice team. When symptoms are well managed, it allows for the patient to enjoy living life and time spent with others.
How is hospice care different from other types of home health care?
In addition to the care provided directly to the patient, ongoing grief support services are provided to family members. Hospice care does not end when a patient dies. Hospice support staff and volunteers maintain contact with the family for at least one year after the death of a patient.
Who pays for my hospice care?
Medicare, Medicaid and most private insurance plans pay for hospice care. This includes payment for services, medications and supplies directly related to the patient’s terminal illness. In addition, professional bereavement counseling as well as spiritual counseling and guidance, are included as covered benefits. Hospice benefits do not cover nursing home room and board expenses. The patient is responsible for paying any nursing home charges.
Will hospice provide care for longer than six months?
Hospice patients can, and sometimes do, live longer than six months from the time they begin receiving hospice services. Often times this does not mean hospice care ends. The hospice doctor and clinical team will regularly reevaluate the patient’s condition. Any time the patient’s life expectancy is six months or less, hospice care can continue. It is not unusual for a patient to be under hospice care beyond the six-month time frame.
For additional information, please visit the following websites:
Choosing a Hospice
There may be one hospice organization or several in your community. It is important to find out about the services that each hospice offers. If there are several hospices that serve your area, you may want to speak with some of them and/or ask your health care provider if they have recommendations for selecting a hospice. You may decide to request services from a particular hospice; be sure to communicate that request to your physician.
The National Hospice and Palliative Care Organization has developed some questions to help identify factors that may be important to you and your family when selecting a hospice.
Local Hospice Resources
- Camp Safe Haven
Camp Safe Haven is free and open to any camper who has experienced the loss of a loved one through death. Camp Save Haven Information (PDF)
- Haven Hospice
Haven Hospice is a non-profit, community hospice providing hospice services and programs for over 35 years. Haven Hospice serves: Baker, Clay, Duval, Nassau, St. Johns, Flagler, Volusia, Alachua, Bradford, Columbia, Dixie, Gilchrist, Hamilton, Lafayette, Levy, Putnam, Suwanee, and Union counties.
- Hospice of Citrus and the Nature Coast
Hospice of Citrus and the Nature Coast is a non-profit hospice which has provided care for over 30 years. Hospice of Citrus and the Nature Coast serves Alachua, Bradford, Citrus, Columbia, Dixie, Gilchrist, and Hamilton, Lafayette, Levy, Putnam, Suwannee, and Union counties.
- Hospice of Marion County
Hospice of Marion County is a non-profit community hospice which has provided care to residents of Marion County since 1983.
- Gentiva Hospice
Gentiva provides hospice services in a variety of locations. For More information call 1-888-GENTIVA or refer to the location finder for a hospice provider near you.
- Florida Hospice and Palliative Care Association
Established in 1982, Florida Hospice & Palliative Care Association (FHPCA) is a not-for-profit organization representing Florida’s hospice programs. Their webpage explains hospice and palliative philosophy and services. This webpage includes a tool for finding a hospice provider in your area.