Epilepsy in adults - what to ask your doctor
Definition
You have epilepsy. People with epilepsy have seizures. A seizure is a sudden brief change in the electrical activity in your brain. It leads to brief unconsciousness and uncontrollable body movements.
Below are questions you may want to ask your health care provider to help you take care of yourself.
Patient Education Video: Epilepsy
Alternative Names
What to ask your doctor about epilepsy - adult; Seizures - what to ask your doctor - adult; Seizure - what to ask your doctor
Questions
Should I call you, or someone else, every time I have a seizure?
What safety measures do I need to take at home to prevent injuries when I have a seizure?
Is it OK for me to drive? Where can I call to find more information about driving and epilepsy?
What should I discuss with my boss at work about my epilepsy?
- Are there work activities that I should avoid?
- Will I need to rest during the day?
- Will I need to take medicines during the work day?
Are there any sports activities that I should not do? Do I need to wear a helmet for any type of activities?
Do I need to wear a medical alert bracelet?
- Who else should know about my epilepsy?
- Is it ever OK for me to be alone?
What do I need to know about my seizure medicines?
- What medicines am I taking? What are the side effects?
- Can I take antibiotics or other medicines also? How about acetaminophen (Tylenol), vitamins, herbal remedies? Will birth control pills still work if I am taking medicines for my seizures?
- What are the risks with these medicines if I were to get pregnant?
- How should I store the seizure medicines?
- What happens if I miss one or more doses?
- Can I ever stop taking a seizure medicine if there are side effects?
- Can I drink alcohol with my medicines?
How often do I need to see my provider? When do I need blood tests?
What should I do if I am having trouble sleeping at night?
What are the signs that my epilepsy is becoming worse?
What should others with me do when I am having a seizure? After the seizure is over, what should they do? When should they call the provider? When should we call 911 or the local emergency number?
References
Abou-Khalil BW, Gallagher MJ, Macdonald RL. Epilepsies. In: Jankovic J, Mazziotta JC, Pomeroy SL, Newman NJ, eds. Bradley and Daroff's Neurology in Clinical Practice. 8th ed. Philadelphia, PA: Elsevier; 2022:chap 100.
Epilepsy Foundation website. Lifestyle and independent living. www.epilepsy.com/lifestyle. Accessed December 5, 2022.