Enroll-HD (Huntington’s disease)
Enroll-HD is a worldwide research study of Huntington’s disease (HD).
The purpose of this research study is to collect clinical information about you and your health. We will also collect biological samples, such as blood and DNA (the genetic material in your blood). Researchers will use this information and samples to learn more about Huntington’s disease and to try to find new treatments for the disease.
This study is for individuals who have been affected by HD or from an HD family.
This is a longitudinal study. That means we will ask you to undergo the research procedures about once a year for as long as you are willing to participate.
If you choose to participate in Enroll-HD we will collect some of the following information:
- Conduct a clinical evaluation of your current medical status and wellbeing
- Collect a sample of your blood to study your DNA
- Store the data and biological materials we collect from you in a secure place and make them available for future research.
Additional information such as family history and other samples may be gathered, for more details about study procedures please contact Stephen Gullett:
- Individuals diagnosed with Huntington’s disease (HD) OR
- Individuals from a Huntington’s disease (HD) family
For eligibility questions please contact Stephen Gullett:
Can be done from home
KeywordsHuntington disease, Huntington's disease
Principal InvestigatorNikolaus McFarland, MD, PhD
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Studies listed on this site have been approved by a UF Institutional Review Board (IRB), which works to ensure the welfare and rights of research participants as required by federal regulations. Study listings are provided by the UF Clinical and Translational Science Institute in collaboration with UF research teams and the UF IRBs.