HERO Research Registry

Purpose


Thank you for your interest in the HERO Registry.

The HERO Registry formally called the Healthcare Worker Exposure Response & Outcomes (HERO) Registry, collects information from healthcare workers to better understand the impact that the COVID-19 pandemic has on you, your colleagues, family, and friends.

The HERO Registry is open to anyone who works in a healthcare setting, including nurses, therapists, physicians, emergency responders, food service workers, environmental service workers, interpreters, and transporters.

Your participation is entirely voluntary and there is no cost to join. It takes only a few minutes to sign up.

To sign up, start the online form here or continue to read this page to learn more.



Who can join?

To join, participants must be:

  • A U.S. healthcare worker in any profession - including nurses, therapists, physicians, emergency responders, food service workers, environmental service workers, interpreters, transporters — anyone who works in a setting where people receive health care.
  • 18 years old and older


Why should I join?

"It is hard to think that by doing my daily job, not only can I get sick, but I can infect those who I love the most,” said Jorge Lascano, MD, an associate professor of pulmonary and critical care in the UF College of Medicine’s department of medicine. “This is the time to be proactive, to develop ways to stay safe on the front lines. I encourage everyone to be a part of HERO — and part of the solution.” You can learn more about Dr. Lascano's story here. 

Angela Larson, RN, APRN, critical care clinical nurse specialist at UF Health Shands Hospital, shares her reason for joining the HERO registry in a video here.



What will I be asked to do?

By participating in the HERO Registry, you will become part of a national response to address the problems our healthcare heroes face in real time—and over time.

After joining, you will receive surveys, opportunities to participate in future studies, and learnings from the HERO research community. You can participate as much or as little as you like. The registry will follow a protocol and data guidelines to keep your information secure.

One particular study you may be asked to join is a clinical trial called “Healthcare Worker Exposure Response & Outcomes of Hydroxychloroquine Trial (HERO-HCQ)”.

HERO-HCQ is a randomized clinical trial of approximately 15,000 HERO Registry participants. It will test whether hydroxychloroquine (HCQ, brand name Plaquenil®) can prevent COVID-19 infection in healthcare workers.

Only adults in the HERO registry may be eligible to participate in the clinical trial, HERO-HCQ. Joining the registry does not guarantee you will be contacted for the HERO-HCQ. You can learn more about the clinical trial, HERO-HCQ, here.



How can I join the HERO Registry?

You can use a work email address, gmail address, or another email address to sign up using the form here. 

If you have questions about the HERO Registry or HERO-HCQ trial, please email Hero-research@duke.edu.



Partners

The HERO initiative is being led by the Duke Clinical Research Institute, part of the Duke University School of Medicine. Funding of up to $50 million is being provided by the Patient-Centered Outcomes Research Institute (PCORI), a Washington, D.C.-based independent, nonprofit organization. Its mission is to fund research that provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed health care decisions.

Age

18 to 65
65 and over

Gender

Male
Female

Can be done from home

Yes

Keywords

covid-19, Coronavirus, OpenCovid19, AllCovid19

Principal Investigator

Lisa Merck, MD

Contact Information

Hero-research@duke.edu


Be an Informed Participant

Before deciding to participate in a research study, take time to learn about clinical research, how it's conducted and your rights as a research participant. Following are some helpful resources from independent sources. Always remember that a clinical research study is research, not treatment.

Know Who to Contact

  • Eligibility: For questions about a specific study and who is eligible to participate, call or email the contact person listed for that study.
  • Your Rights: For questions about your rights as a research participant, contact the UF Institutional Review Boards at 352-273-9600.
  • Feedback: For general questions or feedback about study listings, email the UF Clinical and Translational Science Institute at CTSI-Studies-L@lists.ufl.edu.

Other Resources

  • HealthStreet: Health-focused services, classes and events, and opportunities to participate in research.
  • ResearchMatch.org: Join a national registry of volunteers willing to be contacted about research studies.

For Research Teams