The UF Health Center for Pediatric Neuromuscular and Rare Diseases is founded on the philosophy that integrated, interdisciplinary care is the most effective approach for patients with neuromuscular and orphan diseases.
The center coordinates and provides patient care for these disorders through expert specialists from diverse medical backgrounds in one centralized location. Today, the center consists of a collaborative effort of specialists with backgrounds in cardiology, critical care, endocrinology, gastroenterology, general pediatrics, hematology/oncology, nephrology, neurology, occupational and physical therapy, orthopaedics, pulmonology, rheumatology and surgery.
The UF Health Center for Pediatric Neuromuscular and Rare Diseases provides patient-centric care, allowing patients to interact with all necessary medical providers in one location. This care model is designed to address the many aspects of a patient’s medical needs in a single visit. Established in 2010 as a partner with the Muscular Dystrophy Association, the center operates weekly from our UF Health Pediatric Specialties – Medical Plaza location in Gainesville, Florida.
Learn more about our team, our research, and the treatments we offer for the pediatric neuromuscular disorders diagnosed and cared for at our center.
Improving patient care by finding better ways to treat those experiencing pain or discomfort from any neuromuscular disease is one of our major goals, and we do that through research and clinical trials. Learn more by visiting the Powell Center for Rare Disease Research and Therapy.
- Muscular Dystrophy Association (MDA)
- Friedreich’s Ataxia Research Alliance
- The Duchenne Registry
- Jett Foundation
- Little Hercules Foundation
- Parent Project Muscular Dystrophy (PPMD)
- Spinal Muscular Atrophy Foundation
- Treat-NMD Neuromuscular Network
- Understanding Duchenne
- Walking Strong
- World Duchenne Organization (WDO)
Address, directions and parking
Hours of operation
Every Wednesday of month 11am-5pm
Conditions and treatments
- Pediatric Cardiology
- Pediatric Endocrinology
- Pediatric Neurology
- Pediatric Neuromuscular Rehabilitation
- Pediatric Pulmonary
To obtain a copy of your medical records from UF Health Center for Pediatric Neuromuscular and Rare Diseases, please contact (877) 543-7783, (352) 294-5757.
Costs, billing, and insurance
Pay your bill online by logging into MyUFHealth. If you'd like to pay by phone, please call (352) 265-7906 or our toll-free number (888) 766-8154. You can also make checks or money orders payable to UF Health PO Box 16051 Lewiston, ME 04243-9534.
If you have questions or wish to pay in person, please consult our billing section.
Shands hospitals and UF Physician practices accept insurance from numerous providers, including Aetna, Blue Cross Blue Shield of Florida, CIGNA, Humana, Capital Health, United Healthcare, Medicaid, and state and government services. For a full list of accepted plans visit our Insurance / Billing page.
Insurance acceptance varies between physicians and locations and is subject to change. To confirm that a specific physician will accept your insurance, please contact the practice using the telephone numbers listed at the top of the page. A representative will be happy to assist you.